Rare and genetic epilepsies at AES 2026

Dec 4–8, 2026 Denver, CO ~6.2k attendees Website

47 organizations at AES 2026 present work in rare and genetic epilepsies: 28 patient groups, societies, hospitals, research programs and agencies, 14 drug and therapy developers and 5 testing labs, service and software companies. 47 of them have their own page in this guide. As of Oct 8, 2026.

All 180 organizations at AES 2026 →

Showing 1–20 of 47 organizations

Organization	AES 2026 Attendance
Acadia Pharmaceuticals San Diego, CA
acadia.com Epilepsy drug and therapy developers Neuroscience biopharma whose approved medicines treat Rett syndrome and Parkinson’s disease psychosis, with a pipeline for other rare neurological diseases.	Booth Exhibiting at Booth 700 Sat, Dec 511:45am–5:30pmSun, Dec 610:00am–4:00pmMon, Dec 710:00am–2:00pm Exhibit floor office O3022
Biocodex Bedminster, NJ
biocodex.us Epilepsy drug and therapy developers U.S. arm of a family-owned French drug company; it markets Diacomit (stiripentol) for seizures in Dravet syndrome.	Booth Exhibiting at Booth 2612 Sat, Dec 511:45am–5:30pmSun, Dec 610:00am–4:00pmMon, Dec 710:00am–2:00pm
BioMarin Novato, CA
biomarin.com Epilepsy drug and therapy developers Biotechnology company with medicines for rare genetic diseases, including an enzyme replacement therapy for CLN2 Batten disease.	Booth Exhibiting at Booth 3306 Sat, Dec 511:45am–5:30pmSun, Dec 610:00am–4:00pmMon, Dec 710:00am–2:00pm
CACNA1A Foundation Norwalk, CT
cacna1a.org Patient groups and foundations Patient group for CACNA1A-related disorders, connecting families, clinicians and scientists to speed diagnosis, treatment and a cure.	Booth Exhibiting at Booth N417 Sat, Dec 511:45am–5:30pmSun, Dec 610:00am–4:00pmMon, Dec 710:00am–2:00pm
CDG Care Colorado Springs, CO
cdgcare.org Patient groups and foundations Patient group for congenital disorders of glycosylation, rare inherited metabolic conditions.	Booth Exhibiting at Booth N123 Sat, Dec 511:45am–5:30pmSun, Dec 610:00am–4:00pmMon, Dec 710:00am–2:00pm
Clouds of Care Ghent, Belgium
cloudsofcare.com Clinical research organizations Belgian medtech offering EEG signal processing and biomarker analysis for clinical trials in rare developmental and epileptic encephalopathies.	Booth Exhibiting at Booth 1308 Sat, Dec 511:45am–5:30pmSun, Dec 610:00am–4:00pmMon, Dec 710:00am–2:00pm
CSNK2A1 Foundation San Francisco, CA
csnk2a1foundation.org Patient groups and foundations Patient group for Okur-Chung neurodevelopmental syndrome, an ultra-rare genetic condition caused by CSNK2A1 variants.	Booth Exhibiting at Booth N314 Sat, Dec 511:45am–5:30pmSun, Dec 610:00am–4:00pmMon, Dec 710:00am–2:00pm
Cure GABA-A Woodland Hills, CA
curegabaa.org Patient groups and foundations Nonprofit founded in 2023 to fund research on GABA-A receptor variant disorders and run a digital natural history study.	Booth Exhibiting at Booth N316 Sat, Dec 511:45am–5:30pmSun, Dec 610:00am–4:00pmMon, Dec 710:00am–2:00pm
CURE SYNGAP1 Mill Valley, CA
curesyngap1.org Patient groups and foundations Family-led SynGAP Research Fund working to speed research toward a cure for SYNGAP1-related disorders and support affected families.	Booth Exhibiting at Booth N116 Sat, Dec 511:45am–5:30pmSun, Dec 610:00am–4:00pmMon, Dec 710:00am–2:00pm
CureGRIN Foundation Boulder, CO
curegrin.org Patient groups and foundations Patient group for GRI neurodevelopmental disorders (GRIN, GRIA and GRIK gene variants), whose symptoms include epilepsy.	Booth Exhibiting at Booth N122 Sat, Dec 511:45am–5:30pmSun, Dec 610:00am–4:00pmMon, Dec 710:00am–2:00pm
DEE-P Connections Washington, DC
dee-p.org Patient groups and foundations Hub connecting families of children with developmental and epileptic encephalopathies to education and research resources.	Booth Exhibiting at Booth 319 Sat, Dec 511:45am–5:30pmSun, Dec 610:00am–4:00pmMon, Dec 710:00am–2:00pm
DLG4 SHINE Foundation Colorado Springs, CO
dlg4shine.org Patient groups and foundations Patient group for DLG4-related synaptopathy that supports research and treatment development and offers families a support community.	Booth Exhibiting at Booth N324 Sat, Dec 511:45am–5:30pmSun, Dec 610:00am–4:00pmMon, Dec 710:00am–2:00pm
Dravet Syndrome Foundation Cherry Hill, NJ
dravetfoundation.org Patient groups and foundations Funds Dravet syndrome and related epilepsy research, raises awareness and supports affected individuals and families.	Booth Exhibiting at Booth N213 Sat, Dec 511:45am–5:30pmSun, Dec 610:00am–4:00pmMon, Dec 710:00am–2:00pm
Dup15q Alliance Norristown, PA
dup15q.org Patient groups and foundations Patient group for chromosome 15q duplication syndrome, offering family support and backing research and targeted treatments.	Booth Exhibiting at Booth N218 Sat, Dec 511:45am–5:30pmSun, Dec 610:00am–4:00pmMon, Dec 710:00am–2:00pm
FamilieSCN2A Foundation Gettysburg, PA
scn2a.org Patient groups and foundations Patient advocacy group for SCN2A-related disorders that funds research, builds community and advocates for affected families worldwide.	Booth Exhibiting at Booth N418 Sat, Dec 511:45am–5:30pmSun, Dec 610:00am–4:00pmMon, Dec 710:00am–2:00pm
Foundation for Angelman Syndrome Therapeutics Oldsmar, FL
cureangelman.org Patient groups and foundations Patient advocacy group funding research and development programs toward a cure for Angelman syndrome.	Booth Exhibiting at Booth N322 Sat, Dec 511:45am–5:30pmSun, Dec 610:00am–4:00pmMon, Dec 710:00am–2:00pm
GeneDx Gaithersburg, MD
genedx.com Genetic testing labs Genetic testing company focused on exome and genome diagnosis of rare and inherited disease, including epilepsy.	Booth Exhibiting at Booth 1805 Sat, Dec 511:45am–5:30pmSun, Dec 610:00am–4:00pmMon, Dec 710:00am–2:00pm
GRIN Therapeutics New York, NY
grintherapeutics.com Epilepsy drug and therapy developers Develops targeted therapies for pediatric neurodevelopmental disorders driven by NMDA receptor dysfunction, such as GRIN-related disorders.	Booth Exhibiting at Booth 1212 Sat, Dec 511:45am–5:30pmSun, Dec 610:00am–4:00pmMon, Dec 710:00am–2:00pm
Harmony Biosciences Plymouth Meeting, PA
harmonybiosciences.com Epilepsy drug and therapy developers Develops and markets treatments for rare neurological diseases, with drugs in development for Dravet syndrome and Lennox-Gastaut syndrome.	Booth Exhibiting at Booth 1518 Sat, Dec 511:45am–5:30pmSun, Dec 610:00am–4:00pmMon, Dec 710:00am–2:00pm
Immedica Chicago, IL
immedicaus.com Epilepsy drug and therapy developers U.S. arm of a Swedish pharmaceutical company that brings medicines for rare diseases to patients.	Booth Exhibiting at Booth 2815 Sat, Dec 511:45am–5:30pmSun, Dec 610:00am–4:00pmMon, Dec 710:00am–2:00pm

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Not affiliated with the American Epilepsy Society. Organization details are derived from AES’s published exhibitor list and each exhibitor’s own profile and website. Submit a correction