Rare disease at Meeting on the Mesa 2026

71 organizations at Meeting on the Mesa 2026 present work in rare disease: 55 therapy developers, 9 academic, hospital and public organizations, 6 suppliers and service providers and 1 investor. Between them they bring 49 presentations to the program. Most represented: Arbor Biotechnologies (1 on the program), Children’s National Hospital (1 on the program), CTI Clinical Trial & Consulting Services (1 on the program). 47 of them have their own page in this guide.

All 583 organizations at Meeting on the Mesa 2026 →

Format
Top represented
Showing 1–17 of 71 organizations
OrganizationMeeting on the Mesa 2026 Attendance
Silver Sponsor
Cell & gene therapySilver Sponsor
Develops gene-editing therapeutics for genetic diseases, including liver and central nervous system conditions and rare disorders.
Spotlight
Mon, Oct 5
10:45am
Innovation Spotlight company presentation
FLW Ballroom F
Panel
Wed, Oct 7
4:15pm
Silver Sponsor
Hospital & health systemSilver Sponsor
Provides pediatric hospital care and develops treatments for genetic and rare diseases through clinical and translational research.
Spotlight
Mon, Oct 5
5:15pm
Innovation Spotlight company presentation
FLW Ballroom F
Panel
Wed, Oct 7
10:45am
Delivering CAR-T: Expanding Access to Transform Patient Care
FLW Ballroom E
Diamond Sponsor
Services & consultingDiamond Sponsor
Provides clinical research, regulatory consulting, site management, and laboratory services for biopharmaceutical trials, including cell and gene therapies and rare diseases.
Spotlight
Mon, Oct 5
3:00pm
Innovation Spotlight company presentation
FLW Ballroom G
Chair
Wed, Oct 7
Platinum Sponsor
Services & consultingPlatinum Sponsor
Provides biomarker-driven CRO services, clinical trials, specialty laboratories, biospecimens, data science, and companion diagnostic support.
Spotlight
Mon, Oct 5
12:00pm
Innovation Spotlight company presentation
FLW Ballroom F
Panel
Wed, Oct 7
9:00am
REGENXBIO
Rockville, MD
Silver Sponsor
Cell & gene therapySilver Sponsor
Develops AAV gene therapies for retinal and rare diseases, including programs for wet AMD, diabetic retinopathy, Duchenne muscular dystrophy, and MPS II.
Spotlight
Mon, Oct 5
11:00am
Innovation Spotlight company presentation
FLW Ballroom G
Panel
Wed, Oct 7
10:30am
Silver Sponsor
Cell & gene therapySilver Sponsor
Develops gene therapies for rare cardiovascular diseases, with additional programs in hematology and immunology and proprietary AAV manufacturing capabilities.
Spotlight
Mon, Oct 5
11:30am
Innovation Spotlight company presentation
FLW Ballroom F
Panel
Wed, Oct 7
uniQure
Amsterdam, Netherlands
Silver Sponsor
Cell & gene therapySilver Sponsor
Develops one-time gene therapies for hemophilia, Huntington’s disease, epilepsy, Fabry disease, and other severe conditions.
Spotlight
Mon, Oct 5
3:15pm
Innovation Spotlight company presentation
FLW Ballroom F
Ocugen
Malvern, PA
Silver Sponsor
Cell & gene therapySilver Sponsor
Develops gene and cell therapies for inherited retinal diseases, blindness and other serious conditions.
Panel
Wed, Oct 7
Leadership Perspectives: Beyond the Breakthrough
BridgeBio
Palo Alto, CA
Silver Sponsor
Pharma & large biotechSilver Sponsor
Develops medicines for genetic conditions through autonomous teams focused on underserved and rare diseases.
Sponsor
In the meeting’s sponsor directory, with no session on the public program
EveryLife Foundation
Washington, DC
Silver Sponsor
Patient advocacy & nonprofitSilver Sponsor
Advocates for policies and research funding that improve diagnosis, treatment, and access for people with rare diseases.
Sponsor
In the meeting’s sponsor directory, with no session on the public program
Silver Sponsor
Pharma & large biotechSilver Sponsor
Develops and commercializes therapies for cancer, transplant-related disease, and rare genetic disorders.
Sponsor
In the meeting’s sponsor directory, with no session on the public program
Gold Sponsor
Services & consultingGold Sponsor
Provides clinical development, trial management, regulatory, and market-access services, with expertise in rare diseases and complex therapies.
Sponsor
In the meeting’s sponsor directory, with no session on the public program
Event Supporter
Patient advocacy & nonprofitEvent Supporter
Supports children and families affected by rare diseases through Canadian patient advocacy, research connections, and care resources.
Sponsor
In the meeting’s sponsor directory, with no session on the public program
Solid Biosciences
Charlestown, MA
Silver Sponsor
Cell & gene therapySilver Sponsor
Develops genetic medicines for Duchenne muscular dystrophy and other serious diseases, including gene therapies and genetic medicines for cardiac conditions.
Sponsor
In the meeting’s sponsor directory, with no session on the public program
Patient advocacy & nonprofit
Patient advocacy nonprofit advancing therapies for Angelman syndrome and other rare monogenic neurodevelopmental disorders through venture philanthropy.
Spotlight
Mon, Oct 5
9:45am
Innovation Spotlight company presentation
FLW Ballroom F
Panel
Wed, Oct 7
3:30pm
The Patient Voice: Shaping the Development of Cell and Gene Therapies
FLW Ballroom E
Skylark Bio
Cambridge, MA
Cell & gene therapy
Develops locally delivered gene therapies for monogenic diseases, including genetic hearing loss and CNS disorders.
Spotlight
Tue, Oct 6
2:45pm
Innovation Spotlight company presentation
FLW Ballroom G
Emerging Track
Cell & gene therapy
Develops allogeneic CAR-iNKT cell therapies for blood cancers and solid tumors, including its lead CD19-targeting program ALA-101.
Spotlight
Tue, Oct 6
10:00am
Innovation Spotlight company presentation
FLW Ballroom F

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